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From:
momtogaka <[log in to unmask]>
Reply To:
Lactation Information and Discussion <[log in to unmask]>
Date:
Sun, 18 Jun 2006 09:21:02 -0700
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There is a recessive genetic disorder called Hereditary Fructose
Intolerance
> that makes a baby unable to digest fructose in any form.  Vomiting and
> illness,and even death can result from continual exposure to fructose.
> Exclusive breastfeeding can make an infant symptom free and symptoms
> manifest at the time that solids are started.   Formula fed babies are
very
> ill right away as most formulas include fructose in their ingredients I
> think.
>
> I became very familiar with this when my #4 baby, exclusively breastfed,
had
> her weight gain virtually stop between 6 to 12 months.  First two times
she
> had juice, she vomited.  We were referred to a ped. endo and she was
> diagnosed with HFI.   She is now almost 9, and she was diagnosed
> incorrectly, she is growth hormone deficient.  (however, in the back of my
> mind, she may still have a mild case of this disorder, she still has a
> strong aversion to fruit which can indicate a milder case).  Only
definitive
> test is a liver biopsy, there are newer blood tests which can indicate a
> positive result, but the blood tests may give false negatives.     Google
> HFI and you should find a link for Boston University and Dean Tolan PHd.
He
> is one of the few people in the world doing research on this disorder.
>
> It is remarkable as far as breastfeeding, as exclusive breastfeeding
totally
> protects an infant from any symptoms or problems from this disorder.
There
> are varying degrees to this disorder, some adults are diagnosed and the
only
> presenting symptom was a lifelong aversion to fruit.  Some are diagnosed
> after being hospitalized for surgery and given IV fluids with fructose.
> (that is another test, an IV challenge with fructose, can be very
> dangerous).
>
> In our case, our daughter is able to eat and drink things with fructose,
so
> we don't believe she has it.   She was diagnosed with growth hormone
> deficiency 2 years ago and now takes daily injections of growth hormone.
> She did breastfeed almost exclusively until she was 2, (much unlike her
> other 5 siblings which all took to solids well).  She continued
> breastfeeding frequently until she was nearly 5.
> Hope this helps,
> Lisa Papas
> Grosse Pointe, Michigan

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