> Thanks, Lynn, for your input.  The breast milk was TOTALLY not 
> tolerated
> from the beginning, and that was the first indication something was
> wrong.  She vomited constantly, almost without a break.  She improved
> only slightly for a couple days with soy milk, but is deteriorating
> again now.  She is and has been totally dependent on the hospital care,
> and perhaps can't even be flown to Munich or Warsaw, even with a 
> medical
> person accompanying her.  You're, right, there is no formula that can
> sustain her life.  Only the Lord can keep her alive.  The first 
> priority
> is an accurate diagnosis, but she can hardly afford to lose even a
> couple millimeters of blood (which they are going to hand carry to
> Munich, by plane, of course), and can't be moved unless she improves a
> bit.  It is a miracle she was even born alive.  Most of the questions
> that doctors are asking about her blood chemistry cannot be answered
> here.  It was a BIG deal to find out about those 3 amino acids being
> high.   The children's hospital in Warsaw sounded like a good
> possibility in the beginning, but they haven't followed through on the
> steps needed.  A children's hospital in Munich may be more cooperative,
> we hope.

I am not optimistic.  But maybe if they can get a clear diagnosis, 
something can be done, or at least the medical establishment in her 
country will have a little bit of information to go on in case this 
happens again.  I believe that she is in Ukraine.

Lynn in MO USA

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