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Subject:
From:
Kathy Dettwyler <[log in to unmask]>
Reply To:
Lactation Information and Discussion <[log in to unmask]>
Date:
Fri, 25 Feb 2000 13:26:52 -0600
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Pat -- there is tons of info on the web, and Ross Labs apparently makes a
special formula for children with this.  It seems to be genetic??
Kathy Dettwyler


I found this site by doing an Infoseek search on Methylmalonic acidemia,
and there are many others.

Organic Acidemia Association
     13210 35th Avenue North
     Plymouth, MN 55441 (new address Feb 1999)
     612-559-1797 - voice
     612-694-0017 - fax
     E-mail: [log in to unmask]
     Web site: http://www.oaanews.org


 Contact: Kathy Stagni, Executive Director, e-mail:  [log in to unmask]

A Guide for the Family of the Child with Methylmalonic Acidemia, a book for
families. The Ross Metabolic Formula System,
Columbus, OH. 1 800 986-8755.
     Describes MMA, the amino acids involved, as well as treatment. The
second part of the book is dedicated to dietary management issues.
Recommended by
     a metabolic nutritionist as very helpful to teach families about diet.



Also See:

     Alliance of Genetic Support Groups Current Directory
     Family Village Disability-Related Resources
     National organizations information on genetic conditions or birth
defects
     Online information, National Health Information Center (NHIC)
     Urea Cycle Conditions
     Metabolic Conditions


----------------------------------------------------------------------------
-------
Katherine A. Dettwyler, Ph.D.                         email:
[log in to unmask]
Anthropology Department                               phone: (409) 845-5256
Texas A&M University                                    fax: (409) 845-4070
College Station, TX  77843-4352
http://www.prairienet.org/laleche/dettwyler.html

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