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From:
Alice Farrow <[log in to unmask]>
Reply To:
Lactation Information and Discussion <[log in to unmask]>
Date:
Tue, 31 Jul 2012 19:47:53 -0400
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Maria, yes I think some kind of protocol that describes how to approach feeding would be perfect. 

I have been reading up on nasal gastric tubes and they appear to be considered necessary in the case of severe clefts (where there are multiple problems) or where weight gain is low. I haven't yet found anything that indicates when or how to decide that a tube is necessary.

I just read the comment of an orthodontist who works on the cleft team here in Italy who took the time to enter into a parents discussion on this issue. She writes that in a neurologically normal infant, the passage of liquid into the lungs is quite modest, and if that is the fear, then it's possible to try first with water.

So, I wonder if there is any risk in latching a baby on, or spoon feeding minute amounts of expressed colostrum? I assume not. Most cleft affected infants are fed this way, by their parents. If water is not risky, then would breast milk or colostrum be less so, being physiological liquid?

I have contacted this orthodontist in private as she is active in promoting europe wide protocols for treatment of clefts. 

Alice Farrow
LLL Leader, Rome, Italy

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