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Subject:
Re: Kallman's syndrome
From:
"Catherine Watson Genna BS, IBCLC" <[log in to unmask]>
Reply To:
Lactation Information and Discussion <[log in to unmask]>
Date:
Sun, 25 Mar 2018 16:22:21 -0400
Content-Type:
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There's a great review article, though it doesn't talk about bf per se:

Boehm, U., Bouloux, P. M., Dattani, M. T., De Roux, N., Dodé, C., 
Dunkel, L., ... & Maghnie, M. (2015). Expert consensus document: 
European Consensus Statement on congenital hypogonadotropic 
hypogonadism—pathogenesis, diagnosis and treatment. /Nature Reviews 
Endocrinology/, /11/(9), 547.

It seems that if optimal treatment is initiated in puberty, women with 
Kallman can have normal breast, ovarian and uterine development.  They 
may need additional hormonal help to ovulate, but can get pregnant. I 
imagine the absent sense of smell would be more of a problem for 
mothering than the GnRH signalling deficit once the baby is born.

Catherine Watson Genna BS, IBCLC  NYC  www.cwgenna.com

On 3/25/2018 10:31 AM, Margaret Sabo Wills wrote:
> Has anyone worked with a mother with Kallman's Syndrome?  It's a rare genetic disorder, more common in males, with the affected person is not producing certain hormones.  https://ghr.nlm.nih.gov/condition/kallmann-syndrome
>
> The Lactnet archives are a treasure.  It was the only place on a quick search that discussed breastfeeding with the syndrome (likely because pregnancy itself is challenge).  But does anyone have any experiences to share, or to add their thoughts on the hormonal challenges to lactation, or any ideas on specific therapies?
>
> Margaret Wills, IBCLC  Maryland USA
>
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