Cleft of Soft-
Roberta,
I think your info was well  put.  We have worked with several with clefts.
Cleft of the soft can't be treated with an appliance and usually moms have a
difficult time with infant being able to hold enough negative pressure to
remove milk.  We are still working with a mom whos baby is 6 months, sounds
just like your situation.  Baby removes milk well on one breast ( possibly
because cleft is on opposite side) and other side has great difficulty.  We
recommended positioning on other breast by switching babies position to keep
cleft side up.  She still needs to pump to keep supply up because baby
doesn't empty well enough to keep supply and she supl with EBM a couple times
a day.  Slow to gain at first, but doing fine now.  Her other child had a
cleft of the soft also and is 3 and on his 3rd set of tubes because of ear
infections.  If trying to keep baby at the breast, pump and supl. is too much
for some moms, I think it is vital to stress the importance of why they need
the benefits of getting the breastmilk, however they get it.
Good Luck,
Jackie -  Murfreesboro, TN
The Nursing Mothers' Center

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