Ann-
I was able to find out the following:
        The world expert on neoroblastoma in children is in NYC
at Memorial/Sloan Kettering.  I am not sure if it is OK to post his
name to the whole list.  If anyone wants to know it email privately
OR maybe the listowners will tell me if I can post to everyone.
I understand that he will answer questions from parents and physicians.
        When neuroblastoma is discovered in a baby less than one year
old there is some chance of spontaneous regression.  That is why they
wait to see if there is nerve involvement.  If there is no involvement
they may not do chemo.

Hope this helps,

Sarah


Sarah Friend Barnett   LLLL, IBCLC
Bronx (New York City), NY  -  [log in to unmask]
" You are not obliged to finish the task,
 neither are you free to neglect it."       R. Tarfon