Hi all. Geesh I wish it would warm up here in Vermont. It is still Cooooolld.

Received the following call for help this am:

CASE STUDY:

Mother had first child yesterday. Baby has Pierre-Roban syndrome. (Terry,
can you please give us a nutshell description of this ? : ) thanks.)  SHort
tongue. NO Soft Palate at all. Having trouble latching, or taking adequate
nutrition from finger feeding or syringe feeding.  The nurses have not
bottle fed infant to this point. Mother wants to do breast milk. They have
tried a Haberman Feeder without much luck.

Any suggestions will be appreciated, and will be passed directly on to the
nurse caring for the mother. Mother will be d/c today. Baby will be kept in
hospital until adequate feeding plan can be made. Occupational therapist is
going to consult with family today.

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Kathleen B. Bruce RN, BSN, IBCLC
Williston, Vermont USA
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To err is human, to really screw up you need a computer...
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