I'm very new to computers, so I don't know if I have responded properly,
but....
I do know a thing or two about Craniosynostosis.
At our 4 week visit with our midwife, she noted an odd shape to my son's
head.  We had a peds
visit, x-ray and CT scan, then surgery to correct the fusion of the
saggital suture --done at
12 weeks.  He was in all ways normal...normal birth (home), normal weight,
normal head
circumference etc.
Craniosynostosis is when one or more of the sutures in the infant's
cranium has fused.  At
birth the sutures are not supposed to be fused.  This is what allows for
the molding of the
head in the birth canal and what allows for cranium growth through the
early years.  The
fontaneles are where suture points meet.  My son's fused suture was the
sagital, so his head
was narrow across the temples and sides, with a slightly larger forehead
and occiput (that
became larger and larger, while the rest stayed narrow).  Other children
with CS may have other
sutures that are fused, and when the metopic suture(s) close there is
facial abnormality, and
may well be physiological BF difficulty.  Surgery is phenomanally
successful for CS, and
recovery is quick with no real sequellae.
PLEASE FAMILIARIZE YOURSELF WITH CRANIOSYNOSTOSIS.  IT IS COMMONLY MISSED,
and as practitioners
seeing infants in the first weeks, you are in a wonderful position to
"catch" this.  There is
sometimes a syndrome that CS is part of, but it is often independent.
(Saggital fusion is
supposedly one in 2000 births.)

We also had some nursing trouble, sounding much like what Jean
mentioned--without the
interference of the medical staff.  Tuned out all it was was allowing him
to pacify on my
hubby's finger.
I really doubt that CS has much to do with the case sited here, but I
wanted to take the
opportunity to encourage you all to be aware of CS.  If anyone wants more
information, I'd love
to "talk"
April Dolan RMT, "student" on pathway F to become an IBCLC (I also welcome
every little bit of
assistance anyone out there can give me on becoming an IBCLC without being
an RN...)

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