Pat writes,

<< This baby's bili went into the teens on day 1, and has hovered there,
coming down with lights and going back up after lights are discontinued.


 The highest was 19 at day 5.  With lights she was 16 at day 7.  Then her
count went back up to 17.  Lights again brought it to 15. Baby is now 10 days
old and mom says that she is yellow again--all way to tops of hands and feet.
>>

Pat, has anyone considered Lucey-Driscoll Syndrome (Transient Familial
Neonnatl Hyperbilirubinemia)?  There is a potent, but unidentified inhibitor
of glucuronyl transferase in both mother and infant, and both have to be
tested for it.  The inhibitor disappears from both mom & babe by end of
second week and bili goes down. Sometimes an exchange transfusion needs to be
done.  Bili skyrockets on day 1 & 2 -- way out of proportion to what is
normal.  There is no hemolysis.

I've had a couple of moms/babies that I've suspected this of (in hindsight)
-- now that I know about it of course, I'll never see another mom/baby who
fits this profile.

Reference:  Gartner, L. "Disorders of bilirubin metabolism"  (Vol 1, Chap. 4)
in Hematology of Infancy & Childhood, Ed. nathan & Oski, 4th edition,
Saunders, 1993, p. 90)

Jan Barger, in sunny Wheaton where we are going to see our college (Taylor
University) daughter in the cornfields of Indiana tomorrow!!  Yeah!!

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