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Lactation Information and Discussion <[log in to unmask]>
Date:
Fri, 21 Feb 2003 21:46:38 +0100
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First, thanks to all who have responded so far, from me and from the mother.
I can't begin to say what it means to her to have some new ideas from a group
of 3000 people putting their heads together to think about her and her child.
I've found some possible leads to OTs who work with swallowing/eating
disorders and will be contacting them next week.

It seems that both his clavicles were fractured at birth, but this was not
discovered until two months later, I think during the hospital stay to try to
find out why he was screaming and fighting the breast.  Likely uncomfortable
to be held from the start.  But he doesn't have torticollis, pyloric stenosis
or malrotation of the bowel.
Reflux has not been investigated, much to her frustration, because he not only
spits up, he sometimes 'empties himself' completely - projectile vomiting by
her description, though not daily.  There has been no investigation of his
neurological status.  No physical therapist or OT or speech therapist has been
involved.  The admitting doctor is aware that the problem has not subsided,
despite baby's passing the age when 'colic' is a common diagnosis, and his
response was to re-label the behavior 'a bad habit'.  But mother is optimistic
that the PHN will support her if she wants a referral for a neuro or a reflux
work-up, which would be at a university clinic.

He reacts violently to any food being put in his mouth, but he chews on toys,
things he finds, his hands, anything - as long as he puts it in his mouth
himself.  Mother says 'it seems like his stomach is protesting against the
food'.  Bottles have been tried, with even less success than BF.  He has not
been fed formula.  Outside of feedings he is a happy child, but very sensitive
to sounds, unable to sleep unless the house is very still.  They do baby
swimming with him and he likes it.  Haven't tried, or heard of co-bathing
before now, but plan to give it a go this weekend.

She defines the problem as 'getting food into him - I spend 24 hours a day
getting him fed or worrying about getting him fed and am exhausted'.  She is
more than ready to wean to anything else at all if it would mean the struggle
would stop, and she really hasn't experienced much joy from breastfeeding, but
since bottles were even worse, she has continued.

If any of this sparks any more drops of wisdom, send them on over.  Thanks
again for responses so far.
Rachel Myr
Kristiansand, Norway

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