I have had a baby in my practice who was off breast from 5 days to 2 months of age due to this condition.  Mom used a haberman feeder with Portagen.  She was an experienced nursing mom who had just recently weaned a 2 year old.  It was hard for her to do the bottle, but she did.  When she was given "permission" to nurse again the baby took off like a champ.  The milk supply was maintained by a hospital grade pump.  The archives may have additional info for you.  There is a hospital that has used it's lab centrifuge to make skim breast milk for 3 babies with this condition.  I spoke with this woman regarding my client and she had very specific instructions and ideas..  Sorry I cannot remember her name-hopefully in archives.

tracy throckmorton rn, ibclc
portland, oregon
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