Hi Pat
Thanks for posting that message. What a lovely sister, to think about
inducing lactation during pregnancy for this very challenged little one.
But rather than the sister inducing lactation, why doesn't the mother of
the baby herself go on the very restricted diet and re-lactate. It looks
like she didn't breastfeed even right from the beginning. Sorry, but why
not, with a history of an older child having this condition???
Would it be asking too much for the mother herself to do make every effort
to provide her own life-saving breastmilk for her baby????
Pamela Morrison IBCLC
Rustington, England
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Date: Sun, 31 Jul 2016 13:04:20 -0500
From: Pat Young <[log in to unmask]>
Subject: FPIES
" I was hoping you could help with some advice or point me in the right
direction. I am 27 weeks pregnant today and my sister who just had a baby
April 20th found out her baby has a condition called FPIES, which is a rare
but serious allergy to all kinds of food proteins. This condition is not
new in our family, her older daughter had it and was admitted to CHOP for 2
weeks when she was born but finally her GI tract healed and she was able to
stabilize on RX formula called Neocate. Her new infant has been on that
formula since birth in an attempt to prevent any FPIES complications, but
we recently found out she is allergic to that too and the doctors only have
one more formula they can try her on and hope she isn?t allergic to it. The
baby is very sick and is on the verge of being admitted. We are fearful of
what to do if she continues to reject this last resort option of formula.
Other people have had success feeding babies breastmilk as long as the
mother is on a very restricted diet, no wheat, chicken, eggs, beef, dairy,
corn, soy, shellfish, nuts, etc. I wanted your advice if there is a way I
can safely induce lactation this early in my pregnancy without jeopardizing
the health of my baby. I would be willing to do this for my sister and
niece and comply with the dietary restrictions, but I heard pumping can
induce labor and my little one is still too small to be born. I also have
not been leaking or showing any signs of milk production either. Any help?
We are getting desperate to safely nourish this little baby. Do you know of
any ladies who are familiar with his? My sister had a friend on this same
diet for her baby with FPIES but that was a while ago and she is no longer
producing so getting milk from her is not an option."
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