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Subject:
From:
Barbara Wilson-Clay <[log in to unmask]>
Reply To:
Lactation Information and Discussion <[log in to unmask]>
Date:
Wed, 2 Jan 2002 07:49:23 -0600
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 Hi Jennifer,
 The hard and unfortunate reality is that some infants really struggle to
 feed normally.  I once presented a similar case to Willow Reed (Niles
 Newton's daughter, who was my immed. superviser in the PL Dept.) and Julie
 Stock.  I said something like: "There must be something I'm not seeing.
How
 would they have gotten this baby to breast in ages past."  Both looked at
me
 as if I were totally naive, and said:  "Well, in the past, babies who
 couldn't feed simply died."  We really have forgotten the terrible infant
 mortality that occured and still occurs outside the developed world.
 Infancy is a very vulnerable time and many babies die during this time
 because they are non-viable feeders.  Here we can intervene with therapy
and
 alternate feeding methods, but there certainly are babies beyond our best
 skills who will only bfeed after intense therapy or maybe never (in spite
of
 everyone's best efforts.)

 Breech babies are often difficult to feed.  Because of their intrauterine
 position, wedged up so that they cannot turn and present normally, they
 often develop torticollis or other muscular tension that results from
 inhibited freedom of movement.  Something I'm becomming real interested in
 is the role of the tongue in shaping the palate.  If a baby in utero is
 hyper flexed at the neck (tuck your chin tightly into your neck or twist
 your head sideways and see what your tongue does) he may not be able to
 comfortably rest the tongue so that it approximates and helps to properly
 shape the palate.  I once put my finger into the mouth of a 2 mo. old with
 FTT and, feeling the high, arched palate said:  Hmmmm.  I rarely feel a
 palate shaped like this unless the baby is tongue-tied."  It didn't occur
to
 me that a two month old (foster child of a Leader) could have gone this
long
 with no one observing a tongue-tie, but after feeling the palate, when I
 looked, there it was.  Tongue couldn't elevate properly hence palate wasn't
 shaped normally.

 My guess is this breech in your client's baby somehow prevented normal
 palate formation (the ridge and the flat palate).  There may also be muscle
 tension preventing the baby from opening the jaws.  PTsounds like a good
 idea, but why not some OT as well?  OTs are feeding specialists, and have
to
 devise safe feeding plans for all sorts of compromised infants.  The last
 baby with breech and torticollis I worked with was able to partially bfeed
 after a regimen that included:

         OT and PT therapy
         Long term pumping to protect milk supply
         Use of increasingly wider based bottle teats (I moved baby from
         narrow teat to Avent to help baby learn to flange the lips)
         Transition to breast with nipple shield in seated straddle position
         Gradual weaning off shield

 If your baby won't tolerate penetration into the oral chamber it may be
that
 there is an overactive gag or some other issue like sensory defensiveness.
 The OT can devise a sched. of graduated exercises that help baby accept
 increasingly deeper oral penetration.  I worked with an OT with a baby with
 extreme sensory defensiveness and we used pacifiers of graduating lengths
 and played gentle stroking games with baby to help him accept more depth.
 This baby had been intubated for a month due to infected cyst in the lungs
 and was very aversive to anything going in the mouth to the extent that at
6
 wks pp when I saw him he was being gavaged all night just to get enough
milk
 in him to keep him alive.

 Luckily this baby of yours won't die, and the best case scenario may be
 human milk feeds delivered some other way that keeps options open.
 Personally, I'd work on getting the baby to be able to accept objects in
the
 mouth.

  Hope this helps,

 Barbara Wilson-Clay BSEd, IBCLC
 Austin Lactation Associates
 http://www.lactnews.com

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