Judy, I wonder what else is going on? I'm thinking a breathing issue
affecting ability to feed, especially as you have dealt with other issues.
The "different" tongue- tie and the history you gave set me on this line of
thought. If breathing difficulty is part of this equation, I suspect it may
get worse, as the child has to feed, but feeding and swallowing stresses
what ever is structurally or functionally wrong.
A baby I saw - by the time I saw him - had progressed to breathing
difficulties that worried me more than the feeding. I wrote the referral
report. A surgical team was able to help him, but there hasn't been a
diagnosis. Some of these babies with multiple oro-pharyngeal challenges are
unique. (This little one is now a gorgeous toddler.)
I'm going off Lactnet today or tomorrow as I'm leaving for Melbourne in a
day and a half. Any replies, please contact me privately.
Virginia
Dr Virginia Thorley, OAM, PhD, IBCLC, FILCA
Brisbane, QLD
Judy LeVan Fram wrote
The baby was "only" 2 weeks early, and was frank breech, but her entire
system "looks" like a baby born much earlier. Even past due date, her
ability to
feed was still severely compromised. Even after frenotomy ( which I
agonized over making a recommendation since it was SO far back, and baby so
"affected" somehow) baby only went from moving 0.2 oz to 0.4 oz at the one
feeding I observed. Many bottlefeeds take 45-60 minutes. ( Faster flows
cause
more leaking, gagging, and shutdown) Mom confirmed her behavior is similar
throughout the daily cycle. Even on the bottle, as of a week ago when I saw
them at their first CST session ( watched a new CST practitioner for an
hour since the amazing one I worked with for seven years moved away....),
her
SSB was "broken", milk transfer slow and choppy, and she still gets into
crying jags or shuts down when undereating or overwhelmed. ( Not that I
blame
her.) Even after the frenotomy the tongue movement is limited as her
posterior neck and shoulder region remains so tight she can barely open her
mouth and latches shallowly with a shield and not at all without.
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