Hi Virginia and all,
 
I was actually shocked that this baby seemed to have no evidence of a  
breathing issue like laryngomalacia or tracheomalacia. ( And she's plenty old  
enough for it to have declared itself.) I will see this baby again for  
follow-up  after now two-three CST sessions. As I attempt to tease out what  is 
going on with this little one, I wonder if the work of breathing has been  
affected by the very tight posterior neck/jaw issue, which has limited range 
of  motion, power, and therefore stamina. She never seems "stressed" 
breathing wise,  which has also surprised me. I"m looking forward to seeing her 
after not seeing  her for a week or so to notice any changes. I will then have 
more information to  update the doctor ( the only one I think reads and 
responds to notes...:) Thanks  for putting the breathing ( heart issue, 
something>?) back for  consideration.
 
Other than that local IBCLCs are dealing with a local very popular  
physician who posted on a list with 5,000 moms on it locally, how those who  point 
out and refer for posterior tongue tie are wrong, putting babies in danger  
of bleeding out, overstepping their roles, and are "aligned" with  
likeminded ENTs who are just in it because of "very high  reimbursement". So it's 
going to be even harder for any baby to get the help  they need than before...
Peace,
Judy
 
Judy LeVan  Fram, PT, IBCLC, LLLL
Brooklyn, NY,  USA
[log in to unmask]

 
 
In a message dated 7/23/2013 4:45:34 A.M. Eastern Daylight Time,  
[log in to unmask] writes:

Judy, I  wonder what else is going on? I'm thinking a breathing issue 
affecting ability  to feed, especially as you have dealt with other issues. The 
"different"  tongue- tie and the history you gave set me on this line of 
thought. If  breathing difficulty is part of this equation, I suspect it may 
get worse,  as the child has to feed, but feeding and swallowing stresses 
what ever is  structurally or functionally wrong.




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