I was sent this to pass on to LACTNET. It sounds like Sharone has received a
lot of good information, though more is always appreciated. Thank you to
those who have offered their ideas, help, and support. Note: I did not put
this in caps, it came to me this way. I'm pretty sure she isn't yelling,
maybe she just forgot the Caps Lock was on?!

Sincerely,
Pauli

********************


HI PAULI, NANCY, RACHEL, DENNY, LISA AND EVERYONE AT LACNET,

NOTE WE ARE STILL LOOKING FOR SPECIFIC PERSONAL AND PROFESSIONAL EXPERIENCE
WILL EFFECTIVE TREATMENTS WITH THE HIGHEST PRIORITY BEING FACILITATING SLEEP
FOR THIS MOM AT RISK FROM ALL FIELDS. NEXT I THINK THE SUGGESTIONS ABOUT A
BROADER APPROACH TO MOM'S PHYSICAL, MENTAL AND SPIRITUAL WELLBEING ARE
CENTRAL TO BUILDING A BASE TO HELP THESE CHILDREN. THEN WE ARE LUCKY TO BE
RICH IN LOCAL RESOURDCES AND INTERNATIONAL AUTISM NETWORKS TO HELP BOTH
THESE KIDDOS IN A COMPREHENSIVE FAMILY CENTERED LIFESPAN APPROACH.

WE HAVE MADE SOME PROGRESS WITH ALL YOUR HELP AND SUGGESTIONS. WE NOW HAVE A
LOCAL TREATMENT TEAM PROPOSAL TO OFFER THE FAMILY THAT WE WILL PASS ON YOUR
RECOMMENDATIONS TO ASAP.  THANKS TO THE PACIFIC OAKS CONVENE, EVERYONE'S
IDEAS AND INPUT INTO PAULI AND LACNET, COMBINED WITH SOME PHONE ELBOW GREASE
WE HAVE BEEN ABLE TO TRACK DOWN THREE CRITIAL RESOURCES SO FAR:

1) A WONDERFUL FEMALE BRITISH MIDWIFE WITHIN A WOMEN'S OB PRACTICE. SHE HAS
A DEPTH OF EXPERIENCE IN POST PARTUM MENTAL AND PHYSICAL HEALTH PROBLEMS.
IRONICALLY SHE WAS THE MIDWIFE IN MY OWN BIRTH EXPERIENCE MORE THAN A DECADE
AGO AND I REMEMBER HER SKILLS AND SENSITIVITY WELL. SO I AM ASSURED OF HER
PROFESSIONAL RELATING SKILLS. I HAVE A CALL INTO HER TO CHAT TODAY.

2) WE GOT A HOLD OF OUR CHILD PSYCHIATRIST, DR. GENE STUBBS, WITH WHOM OUR
ORGANIZATION HAS EXCHANGED MUTUAL REFERRALS SINCE 1991. HIS LIFETIME
PRACTICE HAS BEEN IN DIAGNOSIS, RESEARCH AND MEDICAL TREATMENT
SPECIALIZATION IN AUTISM. HE IS A TOP PERSON IN THE FIELD AND A REAL
PIONEER. HE IS VERY SENSITIVE TO ALL DIVERSITY ISSUES AND VERY PERSONALLY
CARING OF CHILDREN AND THEIR FAMILIES. HE WONDERED ABOUT THE SINGLE TRIAL OF
TREATMENT POSSIBILITY OF USING A SERITONIN REUPTAKE BLOCKER IN A LOWERED
DOSE FOR MOM THAT MIGHT HELP THE DEVELOPING BABY EVEN IF A LITTLE EFFECT
CAME THROUGH HER MILK. I HAVE SEEN VERY YOUNG CHILDREN WITH AUTISM HE HAS
TREATED WITH TINY DOSES OF SRUB'S VIRTUALLY WAKE UP TO MUCH MORE TYPICAL
COMMUNICATION AND SOCIAL DEVELOPMENT. WE WAS NOT PRESCRIBING IN THIS CASE,
JUST THEORIZING. HE AND HIS WONDERFUL PSYCH R.N. WILL BE AVAILABLE TO
CONSULT TO THE FAMILY MENTAL HEALTH RESEARCHER/PROVIDER THAT HE OFFERED AS A
PRIZED REFERRAL BELOW:

3) SO SHE NOW HAS A REFERRAL TO THE LEAD PSYCHIATRIST AT OREGON HEALTH
SCIENCES UNIVERSITY SLEEP RESEARCH CLINIC. THAT TEAM DOES RESEARCH ON SLEEP
IN FAMILIES AROUND DIVERSITY PROFILES. THEY COMPLETED A STUDY ON FAMILIES
WITH A HISTORY OF AUTISM IN THE PAST. THEY ARE OPEN TO BOTH NURTITIONAL
(FOODS) SUPPLIMENTS (HERBS AND ORAL MICROSPRAYS OF MELATONIN) AND THE FULL
ALLOPATHIC MENU (DRUGS) AS TRIALS OF TREATMENT. THIS TEAM IS AT THE SAME
UNIVERSITY AS DOCTOR STUBBS AND IN THE SAME CITY AS THE MIDWIFE.

MOST OF ALL EVERYONE OF THESE SKILLED PROVIDERS ARE ACCEPTING OF DIVERSITY
AND UNDERSTANDING OF COMPOUNDING HIGH NEEDS WITHIN FAMILIES AND INDIVIDUALS.
AND THEY WILL BE WILLING TO LISTEN TO MOM'S RESEARCH INSIGHTS AND INTUITIONS
WILL REAL INTEREST. THEY WILL ALSO WORK WELL TOGETHER AND DEFER TO EACH
OTHER'S AREAS OF EXPERTISE IN A REAL TEAM APPROACH IF IT IS NEEDED.

THAT PUTS US ONE THIRD OF THE WAY HOME. THANK YOU FOR ALL YOUR SUPPORT SO
FAR. BUT WE ARE STILL LOOKING FOR TREATMENT MATCH IDEAS TO OFFER THE TEAM.
NEXT WE HAVE TO FIGURE OUT HOW TO GET IT ALL PAID FOR OR DONATED AND HOW TO
KEEP MOM'S EXPECTATIONS AND FOLLOW-THROUGH TOGETHER. THAT WILL BE MY JOB.


THANK YOU ALL SO MUCH

SHARONE LEE
EXECUTIVE DIRECTOR
THRESHOLD
www.THRESHOLD-autism.pvt.k12.or.us
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