We had a baby born today with this syndrome.  Very large tongue, enlarged
liver and omphacele (sp?).  Also having hypoglycemia problems.  Mom is
pumping, baby in NICU.  Surgery is scheduled to close omphacele for
Monday.  Has anyone out there dealt wiyh this before?  I searched the
archives with no luck.
Thanks,
Rachel Pfab, RN, IBCLC

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