My colleague and friend here has a child with Prader-Willi syndrome. I
did help her in the beginning, when her baby was in the NICU.  Pleas
write to me if you want more help, but it did not turn out that her baby
ever was able to latch on, due to extreme muscle weakness. Kathleen

Kathleen Bruce RN IBCLC
Independent consultant: Breastfeeding Clinic of Vermont, Lactation
Resources of Vermont, Medela, Inc.
Listowner Lactnet listserv
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