~~~~~~~~~~~~~~~~~~~
On Mon, 15 May 2006 12:08:39 -0500 Daniela Torres-Marco wrote:
I have permission from the mother to post this problem. This baby has an =
NG tube and parents are getting desperate. ...
Term baby girl, adequate for gestational age, with Down Syndrome and a =
congenital heart defect. Breastfed without any problems for about 1 =
month (growing fine). .... intake and growth declined, so tube feedings were initiated =
.... This went on until her surgery. Repaired ~3 weeks ago, her =
heart is no longer an issue, but she won't eat.
She will only take the breast - hates bottles, SNS, cups, haberman =
nipples, syringes, etc. However, she is taking only 200ml per day from =
the breast (mom doing pre and post wts), everything else in being fed =
through the NG tube. She loves to be at the breast, great latch and =
suck, and will transfer up to 90ml when she gets serious. The problem is =
that she latches and sucks for a little while and then starts to play, =
babble, blow raspberries, smile, etc. She won't go back to "serious" =
feeding (mom has tried 3+hr periods at the breast without success). She =
is a very content little girt, rarely cries from hunger, but does give =
other cues, and she likes to cluster-eat in the afternoons (every hour =
or so) will sleep through the night if parents let her.=20
We have tried: eliminating almost all distractions (her mom is her =
favorite distraction, so can't get rid of her :o)) feeding every 3 =
hours, feeding every 4 hours, feeding completely on demand (had to stop =
this because she would dehydrate), now we are feeding on demand without =
letting her go more than 4 hours and making sure she gets fluid needs =
met (with NGT), but only fluid needs to see if she gets hungry and eats. =
So far, she hasn't. ....
Hi Daniela
Have you tried feeding this little girl *pre-demand*, say at 2 to 2.5 hour intervals? This might help her turn the corner. A little bit, often, is going to add up to more than a little bit at longer intervals.
Just a thought.
Virginia
in Brisbane
~~~~~~~~~~~~~~~~~~
***********************************************
To temporarily stop your subscription: set lactnet nomail
To start it again: set lactnet mail (or digest)
To unsubscribe: unsubscribe lactnet
All commands go to [log in to unmask]
The LACTNET mailing list is powered by L-Soft's renowned
LISTSERV(R) list management software together with L-Soft's LSMTP(R)
mailer for lightning fast mail delivery. For more information, go to:
http://www.lsoft.com/LISTSERV-powered.html
|
