In a message dated 05/11/2004 10:06:04 AM EST, [log in to unmask]
writes:

<< I would have this mom add her own cream to her own milk as a high fat =
 supplement, and try a Haberman's. (I suppose you could even get =
 scientific and figure out the fat percentages and do a 27 cal or some =
 such thing.) I have had a couple of Down's babies who have done well =
 with fingerfeeding (one for three months who went on to nurse for 3 =
 years!) initially also.
 The cardiac stuff can be a heartbreaker. I worked with one sweet babe =
 who gained well with Mom's Own Cream supplement but died after her =
 surgery. The mom was thankful though that she had truly given her =
 daughter the very best chance and a whole lotta loving. >>

I would also add to what Dawn said, about cardiac involvement. Baby  may need
more calories, but may have trouble getting them due to cardiac
compromise/bradycardic episodes/ increased work of breathing. I know Cathy Genna got a baby
off to a good start with really paced, small amounts via peri
syringe...perhaps this could be a tool in the feeding repertoire of this family?
Cathy, care to add something? :)
Judy LeVan Fram, Brooklyn, USA

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