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Subject:
From:
Darillyn Starr <[log in to unmask]>
Reply To:
Lactation Information and Discussion <[log in to unmask]>
Date:
Fri, 24 Jan 2003 07:34:55 -0700
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Marijke, having had FMS for my entire adult life, I thought I would share a
few thoughts about nursing with FMS, which may give you some ideas for
helping your client.  I found that it was essential to have a comfortable
place to sit, with pillows to support my arms, legs and head, so that I
could totally relax while I nursed.   I got a large recliner and kept
pillows in at all times, including a cervical pillow to support my head.
This made a tremendous difference in many ways.  Deep breathing and
meditation was helpful too.

Another thing that was important to me was to try to keep from having other
things to worry about while I was nursing.  One thing that really helped was
to keep my second youngest child in my recliner, while I was nursing the
baby, whenever possible (we tandem nursed some, but the older child never
nursed nearly as much as the baby).  The toddler would sit and cuddle and
often nap, but I also kept books and quiet toys close by, and a videotape in
the VCR, to keep him entertained, if needs be.  This way, I could really
relax while nursing, without worrying about the whereabouts or activities of
my toddler.

I found that night nursings were a mixed blessing.  With FMS, muscles which
stay in the same position for very long tend to go into spasms.  Getting out
of bed and walking across the room a couple times a night was actually
helpful, but only if I could go back to sleep soon after.  Since difficulty
sleeping is a common symptom of FMS, it is especially helpful if the mother
can get the baby started nursing with as little effort as possible, and go
back to sleep while nursing. What worked for me, personally, was putting a
second recliner, equipped with pillows, in my bedroom, where I could get the
baby started nursing and go back to sleep within just a few minutes.

I also have alot of trouble with nipple vasospasms.  Pumping, for me, was
worse than nursing.  I did find that using the larger pump horn adapters was
of some help, despite the fact that I do not have large nipples.  I also had
alot of trouble with vasospasms in between nursings.  The slightest touch,
even of my clothing moving over my bra, would elicit hard spasms. It helped
to cover my nipples very well, with several layers of a soft, fluffy cloth
diaper, in between nursings.

I hope you find this helpful!

Aloha,
Darillyn

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