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Subject:
From:
"S. Heaton" <[log in to unmask]>
Reply To:
Lactation Information and Discussion <[log in to unmask]>
Date:
Thu, 12 Jun 2008 12:21:03 +1000
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>I would like anyone having helped a mother with an infant diagnosed with 
>the
>metabolic disorder Medium Chain acyl CoA Dehydrogenase "MCAD" to respond.



Hi Camille,

I can't help with support for feeding but the parents may appreciate being 
put in touch with the following organisations.

www.fodsupport.org
Apparently the organisation has a good newsletter and MCAD is certainly 
contained in the family stories.

www.mitoaction.org
Mito Action has a teleconference for those with new diagnosis (or their 
parents), usually the second Friday of the month, although I think it's the 
3rd Friday in June due to a public holiday.

www.umdf.org

I'm sure that the family will appreciate your support in this situation.

warm regards
Suzie Heaton
Australia

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