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Subject:
From:
"Pam Hirsch, RN, BSN, IBCLC" <[log in to unmask]>
Reply To:
Lactation Information and Discussion <[log in to unmask]>
Date:
Tue, 10 Oct 2006 09:51:39 -0400
Content-Type:
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Hi, All:  I've been following the Down Syndrome thread with interest.  A 
dear friend of mine was pregnant with her 4th (and last) baby at the same 
time I was pregnant with my 3rd (and last) baby. My daughter was born 
perfect in every way.  Her son was born with Down Syndrome.  She was an 
experienced nurser - all her babies were nursed 2-3 years.  Her son nursed 
14 months beautifully after overcoming some muscle tone issues in the early 
weeks. He is high-functioning and was fortunate not to have any of the 
other common issues.  My friend says the most valuable help that she 
received during those 1st couple of years was support from the wonderful 
families who comprise the National Association of Down Syndrome (NADS).  
They hooked her family up with a family who had gone thru the same 
emotional issues as her family was facing.  She says the help and support 
were phenomenal!  For those of you outside the USA, find out if a similar 
organization exists in your area.  One of the 1st things I do when I work 
with a family with Down is to refer them to NADS, then we work on 
breastfeeding.

Pam Hirsch, BSN,RN,IBCLC
Clinical Lead, Lactation Services
Advocate Good Shepherd Hospital
Barrington, IL   USA

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