I really like this blog from a mom bfing a child with FPIES. I do not understand the mom consuming foods her child is sensitive to--I think that is a very big mistake. If all we can manage is to tolerate a food, rather than thrive on it, it makes no sense to consume it. 

http://brendanfpies.blogspot.com/2011/06/breastfeeding-and-fpies.html


Jennifer Tow, IBCLC, USA & France
Intuitive Parenting Network, LLC

Date:    Fri, 13 Sep 2013 14:41:48 -0500


From:    Allison Laverty Montag <[log in to unmask]>
Subject: Info on FPIES

PTP

I have a mother whose child has been diagnosed with FPIES Food
Protein-Induced Enterocolitis Syndrome. http://fpiesfoundation.org/ . Baby
is 11 months old and cannot eat solids, she is exclusively breastfed. Birth
weight was 6# 4 oz. She is currently 21# and is thriving and in the 75%.

Mother is being instructed to wean so baby can be tested on various
formulas to determine if allergic to dairy or soy. They are considering
introducing Alimentum. Mom does not want to wean and is feeling pushed into
it. She is also being told to pump and they will use her milk to mix with
formula to entice the baby to drink it. Baby currently will not take a
bottle from Mom.

She is being told her milk will not have enough vitamins and nutrients in
the long run.They are concerned with weight gain problems in the future.

Baby cannot eat oats, rice, green beans. Mom eats them and baby tolerates
them well via breast milk.

They will likely be going to allergy specialists in other states as this is
very rare and there are no local specialists. Allergist admits to not being
very familiar with the syndrome.

I am look for good, solid information for Mom. Any specialists, contacts,
support groups, resources you can suggest would be greatly appreciated.

Thank you, ladies.

Allison Laverty Montag BA, RLC, IBCLC
Wisconsin, USA



 

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