My experience with clients with EDS has been more in the direction of O/S. The trick to addressing pain though is nutrition--an anti-inflamamtory diet is so important for all Types of EDS (I am assuming you are referring to Type 3--hypermobility?). 




Jennifer Tow, IBCLC, USA & France
Intuitive Parenting Network, LLC




Date:    Sat, 19 Apr 2014 09:18:47 +1000
From:    Ruth Berkowitz <[log in to unmask]>
Subject: Ehlersa Danlos Syndrome and milk producion

Hi Sally,

I have been working with a mother with Ehlersa Danlos for the past 6 
months.  She has never had a problem with supply, but has started to 
experience galactoceles just near the nipple area.  The stretching of 
her ducts and other tissue is huge.  She does also suffer from low 
blood pressure, which is one of the common aspects of EHD.  She is 
determined to breastfeed for 12 months, but does find the pain 
difficult.  We have worked our ways to feed that are comfortable and 
she does use a number of splints for support.  And we are working on 
managing the galactoceles.

So, the supply issues may be more due to the jaundice and P&A.  Find 
a comfortable manner for the mother to feed and work on ensuring good 
breast drainage.  The mother I am working with starting with a 
reclining sofa and is now able to feed in a sitting 
position.  Although it probably helps that her baby is old enough to 
do a lot of selfattachment.

HTH,
Ruth Berkowitz, IBCLC BFHI Assessor & Educator; Grad. Dip 
Counselling; ABA Breastfeeding Counsellor
Melbourne Australia


>Date:    Mon, 14 Apr 2014 21:58:36 +0100
>From:    sally etheridge <[log in to unmask]>
>Subject: Ehlersa Danlos Syndrome and milk producion
>
>Does anyone have any experience/info re Ehlersa Danlos Syndrome and 
>its effect on milk production? I visited a mother today whose baby 
>has not regained birthweight at almost one month. I helped to 
>improve the position and attachment and observed reasonable feeding 
>though not great - but could have been due to baby being small and 
>jaundiced, and hoped it will improve now the attachment is better. I 
>have just looked at some posts on some forums that suggest some 
>mothers have difficulty with milk production, but it is not a 
>condition I know enough about to understand why - and have not heard 
>of it being a cause of low milk production before. I shall monitor 
>and we will also try expressing after Thursday if necessary as the 
>baby is going to be weighed by the Health Visitor, who wants her to 
>supplement with formula if not enough improvement.
>
>Sally Etheridge IBCLC
>Project Lead
>Mammas Community Breastfeeding Support Project
>07580159278


 

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