Its a normal recommendation in Australia to support breastfeeding for these babies with a team approach between the metabolic team, the dietitian and the Child & Family Health Nurses.

Some relevant information on BF a baby with PKU
http://www.pkunews.org/diet/tipsBaby.htm 

Tips for Breastfeeding a Baby with PKU
(from members of the PKU Listserv group) 
Breastfeeding a baby with PKU can be a satisfying and successful feeding method, in combination with PKU formula. Blood phe levels can be well controlled using breast milk as a natural source of phenylalalnine to augment formula. There are many different approaches that can be successful. It is important for a breastfeeding mother to heed the advice of an experienced PKU clinic, and to find the method that works the best for her, perhaps with a little trial and error in the beginning. Here are some experiences from a professional as well as from mothers who have breastfed their infants with PKU. 

*Virginia Schuett, Director, National PKU News



Gwen


Gwen Moody
CNC Postnatal Care
Westmead Hospital
PO Box 533 Wentworthville 2145
Phone: 02 9845 6964, 0422212774
Fax: 02 9845 8340
Page: 02 9845 5555 - 01135
email: [log in to unmask]


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