I have seen a couple of kids with T cell mediated allergies and/or eosinophilic gastroenteritis who could only tolerate breastmilk but, in every case, the mother had to be on an extreme food elimination diet. I am surprised that Lacie, the little girl in the link earlier, was able to tolerate non-diet restricted breastmilk. I wonder if now, 20-ish years later, she would have been put on an elemental diet instead? This is going to show my (lack of) age, but did we have elemental formula in the early-mid 1980's? I was born the same year as Lacie (1981), so I was otherwise occupied at that time. ;)

As a mom whose child reacted to food protein through breastmilk, which caused us to wean at almost 3, this topic is near and dear to my heart. In cases of extreme food allergies, there are often more questions than answers at any given time. 

In awe of what I am learning from you all,
Cassidy CLC and LLL in Fayetteville, AR




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Date:    Mon, 10 May 2010 07:39:43 -0500
From:    Lynn Carter <[log in to unmask]>
Subject: surviving on human milk

Ten years ago, when I was first cloth-diapering, one of the online diaper
shop owners, a Canadian, had a son who survived on breastmilk and little
more as a teenager.  He apparently developed multiple chemical sensitivities
along with his food allergies, to the point that they had to move out of
their house and into one built with things that wouldn't off-gas, etc.  He
was unbelievably thin and not thriving, but it was the only consistent food
option.  IIRC, they would try other things for short periods and he would
inevitably begin to react.

It's certainly not optimal as a sole food source past toddler hood (imagine
the quantity one would need to feed a teenaged boy!), but it's rather
miraculous when the other option is death.

Lynn
LLL MO USA

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