Thank you  for your kind words Barbara, they mean a lot to me.  
 
 >> Listening, validating feelings, acknowledging that it's tough, makes a
difference.  Perhaps, this isn't exactly what you were looking for as an
answer, but I have realized over the years how important all the above is to
moms in crisis.  As this mom may be aware of, though probably thinking the
worst, CP has all levels of severity.  With early therapies, some
disabilities can be lessened and even prevented. 
 
This is actually perfectly fine advice - I wasn't looking for anything in
particular other than the best way to help her.   As a ped RN she is ahead
of me with certain things, so I will be learning from her while doing my
best to support her and her family.  I have already been to the
neuromuscular therapist appt with her and am going to try and go with them
Monday to the 2nd swallow study - provided I don't have another
consultation.  I plan on staying in close contact with this mom - we are
becoming friends as well, which just makes it even more important to me to
be able to give the best support I can.

Thanks again everyone for your support.  I need it in my own way...
 
Warmly,
Jaye 


             ***********************************************

To temporarily stop your subscription: set lactnet nomail
To start it again: set lactnet mail (or digest)
To unsubscribe: unsubscribe lactnet
All commands go to [log in to unmask]

The LACTNET mailing list is powered by L-Soft's renowned
LISTSERV(R) list management software together with L-Soft's LSMTP(R)
mailer for lightning fast mail delivery. For more information, go to:
http://www.lsoft.com/LISTSERV-powered.html