Hello to all my fellow Lactnetters!   I am asking for help on a situation that
involves my own youngest child. I am a LLL Leader and I  always try to go
through LLL sources first.  This however is a medical situation and our own
physicians have not been able to help us much.  Athina is the youngest of our
kids. She is 19 months and has been to a specialist for slow weight gain. She
has gained only 1# 1 oz. since she was 6 months old. Most of her diet is still
breast milk and small amounts of table foods. The specialist has diagnosed her
with Hereditary Fructose Intolerance. I have gone on Medline to research this
and there is a blood test (fairly new) to test for this. According to my
research there are 6 variations of this genetic problem.  From what I have
learned it is most severe in bottle fed children (what a surprise!)  but I
have found no information on how it relates to breastfed children. It
evidently causes slow growth, and one study mentioned two toddlers that gained
weight after diet modifications were made. It made  no mention of how these
two children were fed prior to the diet changes.

As far as our situation goes, Athina was born at 38 weeks at 7# 8oz. She was
exclusively breastfed and began projectile vomiting at 5 weeks.  She was
diagnosed with reflux. She never had any meds and gained within the normal
range until she was 6 months despite the frequent vomiting of breast milk.
She is very intolerant of both dairy and soy in my diet and does not eat any
of those products herself. She refused solid foods completely until she was 12
months old and absolutely refuses any kind of fruits until this day. She did
try drinking juice at 13 months and vomited it up on 3 occasions. (approx. 1
ounce).

Her height is normal and she is healthy, developmentally correct and then
some!  and basically content. My concern is that during my Medline research I
read case histories of people that had died when given I.V. fluids containing
fructose and sorbitol. I would like to know any info on this fairly recently
developed blood test for this condition, and any info regarding Heriditary
Fructose Intolerance (HFI) in relation to breastfeeding.  Please email me
privately at [log in to unmask] if you do not wish to take up Lactnet list
space.  Thank you!!!!
                                          Puzzled but thankfully breastfeeding
, Lisa Papas