Parents of babies later diagnosed with GSD (glygogen storage disease ) type
1a or 1b have found that the earliest symptoms of their babies were reflux
and diaper rash. Much later they would be diagnosed with the enlarged liver
and distended bowel.
If you know such families that have had children diagnosed with any type of
GSD they will find support and information much greater than they have ever
found in the medical literature on our Glygogen Storage Disease Association
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HOpe this helps some of your families. Not all reflux is a breasfeeding
problem!!