Carrie,
I do feel your pain and frustration and hope you will soon find a solution.
I sent you a post a while back about having nasal stents placed. I don't
know if that was even a workable option. What about a return to the ENT
surgeon or a second opinion with another one? It just seems this cannot be
right for the baby not to be able to breathe and nurse. Maybe local
anti-inflammatory nasal drops, maybe something like neosynephrine drops
before a fdg try. Of course, approve with physician first. Would a consult
with an OT who specializes in infant fdg be available to you? Good luck to
you and your baby.
Laurie wheeler