Dear Carla, I, too, am sorry that you haven't gotten what you need from us.
It's sounds like you are doing everything you can.  It is so discouraging
when family and friends don't even begin to understand your feelings of
loss.  I haven't had any experience with cleft babies, so I can't tell you
much more than, hang in, as he heals the circumstances may change.
Pat Young in SNJ, USA