Hi Leah:
One resource for researching uncommon breastfeeding questions, always a
good place to start, is Lactnet itself, with a decades-long and
searchable archive, maintained by the care of the list-team -- so thank
you to them! (It's sad that Lactnet as a professional forum is now
just a trickle-- a Facebook-style group doesn't encourage longer, more
detailed posts, with references, which one can go back and actually find
again. A 2012 post by a lactation consultant helping a blind mother
still provides useful insights for an uncommon situation).
For an effective search, one has to find the right terms (and in this
case to weed out all the "double-blind studies" and "turn a blind eye,
etc. . But "blind mom" or "blind mother" brought up some useful
stuff. "Visually impaired" may bring up additional posts -- and (as in
any less-frequently dealt-with life circumstance, a health-care provider
should try to mirror how the person refers to themselves -- a long time
ago, a Deaf parent kindly corrected me for referring to her "hearing
problem. "
On the bigger scene, a Google search of "blind parent breastfeeding,"
brings up tons of sources, and you may be able to help her connect with
a group that will make her feel on common ground.
Good luck to the whole team.
Margaret Wills, IBCLC, Maryland, USA
> Date: Fri, 25 Feb 2022 12:22:31 -0500
> From: Leah Rae Jongsma <[log in to unmask]>
> Subject: Supporting visually impaired dyads
>
> Hello all. My team and I have been trying to support a dyad where the mother is visually impaired, she is completely blind. The mother does not have support at home and she struggles with getting the pumping parts aligned on her breast as well as knowing if baby is well latched or evaluating the quality of the feed. It's an incredibly complicated situation that I know is very uncommon, however it made my team and I realize how little knowledge we have about supporting visually impaired families. I was looking for any information or education from this group about ways to support lactation in visually impaired parents and any adaptive devices that could be helpful.
>
>
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