I met with a mother and her first baby in my hospital's outpatient lactation
clinic. I have the patient's permission to post. She was diagnosed with
myoclonus with seizures, years ago. It is considered a chronic condition for
her, worsened by stress and lack of sleep. In my 30 years of supporting
breastfeeding couplets, I have not worked with a patient who has this
particular condition.
I saw them after discharge from the hospital, when the baby was 5 days old.
At that time, her nipples were tender, with one abraded, and the baby was
latching shallowly. The baby was jaundiced, but their pediatrician felt that
the bilirubin level was not worrisome. Baby's weight was beginning to tick
up a little, and they were advised to supplement with formula after feeding
until the pediatrician saw them again in a couple of days. We reviewed the
basics of breastfeeding, latching, nipple comfort, infant behavior,
positioning. She is very motivated and is willing to try almost anything to
breastfeed this baby.
Since she was supplementing, I advised her to pump at least 8 times in 24
hours, with hand expression. Her pump had not arrived yet, so she
hand-expressed, and saw droplets of milk almost immediately. She followed up
in the clinic the next day, very worried that she could not express more
than several drops. She pumped while she was there and got a total of ~10ml,
which she said was way more than she had gotten at home. Her spouse
mentioned that, when the patient was 15, she had a major seizure, lost
consciousness and when she woke up, all sensitivity in one side of her body
was greatly diminished.
Her baby is now 8 days old. She is still pumping as directed and getting
3-10ml total per session. Has anyone worked with a patient experiencing
anything like this?
Thank you for your help,
Beth Sargent, IBCLC, RLC
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