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Subject:
From:
"Nancy E. Wight MD, IBCLC, FABM, FAAP" <[log in to unmask]>
Reply To:
Lactation Information and Discussion <[log in to unmask]>
Date:
Tue, 6 Aug 2019 01:12:44 +0000
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Do a brain MRI.  Have her seen by Speech & Language pathologist/OT team.
NancyNancy E. Wight MD, IBCLC, FABM, [log in to unmask] a message dated 8/4/2019 9:00:19 PM Pacific Standard Time, [log in to unmask] writes:

There is 1 message totaling 86 lines in this issue.
Topics of the day:
  1. I am stumped.
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Date:    Sun, 4 Aug 2019 16:10:04 +0300From:    Jessica Billowitz <[log in to unmask]>Subject: I am stumped.
Just saw a baby girl today, 15 weeks old, because mother said she isrefusing to nurse or take a bottle, and will only eat in her sleep,sometimes.  This is the mother's 8th child.  She has nursed them all.
Baby born 3.500- 36 hour birth that ended when they were about to put in anepidural at 4cm, and as they were preparing her back, she felt acontraction, jumped to 10 and within 8 minutes the baby was out.  She nursedon the delivery table.
On day 1 the baby turned blue and had to be suctioned.  She was underobservation for 24 hours.  Already by day 2 they were complaining in thenursery that the baby would not take a bottle or formula.  The mothernursed.
By day 8 the mother took her to the ped to complain she was not nursing well.  Ped checked and said all was fine and she was gaining weight.  She hasalready seen 3 other IBCLC's with no help.
 
Since then, things have been pretty poor.  Mother described her as just apoor nurser.  She felt her suck was just not very strong or organized.  Shewent to Cranial Sacral 6 times, the practitioner said her neck was tight andsuch was unorganized.
Now the baby is 15 weeks and 5.740 kilo.  She looks fine.  Cute, happy untilyou try to feed her.  Does not appear to have any sensory issues,interactive, cute, and gaining weight all from sleep feeds.  When the mothertries to bring her close to nurse she turns the other way and screams.  Doesthe same with a bottle.  The only thing that calms her down is a pacifierwhich she sucks superficially.
On digital suck exam, normal palate, no tongue tie, she follows stimulationby finger.  The only thing I would say is that when tapping on her tongue orstimulating around her mouth she seems under stimulated.
 
She is meeting all her milestones. 
Every feed takes ages.  She has to try for like 45 minutes, then the motherrocks and shakes till she falls asleep and then in her sleep switches thepacifier for a breast, she will take no more than 5 minutes (this time sheate 85 cc in that time) then realizes what she is doing, wakes up andrefuses second side.
 
Mother says she is always on edge due to borderline hunger.  And the momcan get nothing done because she spends her day and night trying to wait forthe right second where she may not realize and eat.
 
She loves her bath and complains of no other possible sensory issues.  Nostuffed nose, loud breathing, does not snore at night. 
Good muscle tone,  etc.  No spitting up or signs of reflux.  Mom triedallergic diet, going off of wheat, milk, etc.  for two months and it made nodifference.
 
Help!!! I cant make any sense of this.
Any thoughts?  Mother is at her wits end and ready to stop pumping becauseit is so stressful.  She knows nothing is better with bottle and formula butis really maxed out now.  Remember she has 7 other children to deal with!!
Thank you for any thoughts
Jessica Billowitz, IBCLC 
Israel

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End of LACTNET Digest - 3 Aug 2019 to 4 Aug 2019 (#2019-179)************************************************************

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