Hoping that someone with more expertise will weigh in on the difficult question.  One point to make is that by 4 1/2 months, the high prolactin levels of the early weeks have now moderated -- has anyone actually checked the mother's prolactin levels?

Margaret Wills, IBCLC Maryland USA

> 
> Date:    Thu, 21 Dec 2017 16:37:11 -0800
> From:    Molly Brannigan <[log in to unmask]>
> Subject: Breastfeeding & mid-dermal elastolysis
> 
> Hello Wise People!
> 
> Happy solstice to everyone who loves the sun.
> 
> I have a client who has recently been diagnosed with a rare autoimmune
> disorder called mid-dermal elastolysis. Her baby is 4.5 months old.
> Breastfeeding got off to a rough start and they had finally hit their
> stride with easy, pleasurable breastfeeding when the mother was given this
> diagnosis.
> 
> She has been advised to wean, as her specialist physician says that high
> circulating prolactin makes symptoms and damage worse. My client has joined
> an online community of people with this disease, and a number of
> participants have shared that their symptoms were worse during
> breastfeeding and better after weaning. My client isn't sure, though, that
> this is representative.
> 
> Does anyone here have experience with this condition and breastfeeding?
> After such a struggle to get to this easy place, my client is reluctant to
> wean, but wants to do what is best for her health in the long run.
> 
> I appreciate any input you might have.
> 
> Thanks, Molly
> 
>              

             ***********************************************

Archives: http://community.lsoft.com/archives/LACTNET.html
To reach list owners: [log in to unmask]
Mail all list management commands to: [log in to unmask]
COMMANDS:
1. To temporarily stop your subscription write in the body of an email: set lactnet nomail
2. To start it again: set lactnet mail
3. To unsubscribe: unsubscribe lactnet
4. To get a comprehensive list of rules and directions: get lactnet welcome