Hi Ilene,

 I apologize if someone has already suggested this.... your story is very
interesting and at the same time sounds like a frustrating situation for
your daughter and granddaughter. Traumatic even.
Has she tried trying to switch her sleep schedule to see if this occurs
only "at night".  Maybe tricking her to believe that night is day and day
is night?  At 1 year of age it's hard to see that there is a correlation
between any kind of fearfulness that she might have of actual night time,
but then it could be refusing the routine of it.  Just a mother to mother
helpful suggestion as I know none of this seems to make any sense.. I
personally have 5 children and my 4th would scream and cry every time he
was in his car seat, as if in pain. It was very difficult for our entire
family and we tried everything to "fix" it.  We may never know what was
going on and why he reacted that way for about 2 years. Eventually he did
stop... he suffers from anxiety at nearly 10 years of age now. Not sure if
that's related.
While most children thrive in a routine environment maybe changing the
routine completely may act as a reset that could be helpful?? I hope
something found within this group aides your search and yields a positive
result. Best of luck.

Stephanie M Badillo, IBCLC

On Thu, Apr 7, 2022, 6:48 AM Patricia Young <
[log in to unmask]> wrote:

> -----Original Message-----
> From: Debra Swank <[log in to unmask]>
> To: [log in to unmask]
> Sent: Thu, Apr 7, 2022 5:42 am
> Subject: Re: HELP! endless crying/sleepless
>
> Hello Ilene,
>
> What a stressful situation for your grandchild and everyone in the home!
>
> I very much appreciated reading the responses to your post thus far.
>
> I will reinforce the need for a GI work-up, and feel it is necessary to
> rule out reflux/GERD.  Reflux may be occurring more so at night since the
> baby is presumably laying flat in bed without any help from gravity to help
> keep the milk and food in the stomach, as when held in a more upright
> position.  Holding babies with reflux more upright during a feed and also
> for approximately 30 minutes after feeding are standard GERD
> recommendations.
> https://www.healthychildren.org/English/tips-tools/ask-the-pediatrician/Pages/What-is-the-safest-sleep-solution-for-my-baby-with-reflux.aspx
>
> When your granddaughter appears to be in pain re: crying and arching and
> throwing her head back, these behaviors may also be clinical signs of
> reflux in regard to the baby appearing to be trying to move away from the
> pain of reflux.  If GERD is diagnosed, her esophagus may be quite
> irritated, since these difficulties have been occurring for a while now.
>
> Although reflux boards were once recommended for many babies with reflux
> (to keep the baby's head more elevated than the rest of their body,
> utilizing gravity to keep the milk in the stomach and out of the
> esophagus), the American Academy of Pediatrics no longer recommends reflux
> boards or other gadgets to keep the baby more upright, in recognition of
> safe infant sleep practices.
>
> Does your granddaughter have more chest and/or nasal congestion when she
> is put down, and is she less congested when held upright?  This information
> would also help the pediatrician to rule out GERD.
>
> Please keep us posted on how this little one is doing.
>
> With kind regards,
>
> Debbie
>
> Debra Swank, RN BSN IBCLC
> Program Director
> More Than Reflexes Education
> Elkins, West Virginia USA
> http://www.MoreThanReflexes.org
>
>
>
>
>
>
>
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