I've reviewed the LN archives and some of the published reference information out there, and it seems that the thinking around breastfeeding by a mom with PKU, is that there should be no concerns as long as mom's Phe levels are well managed by her diet.

One reference ( http://www.mothertobaby.org/files/maternalPKU.pdf) explains, “If the baby does not have PKU, breastfeeding is not a problem. If you stay on the diet after you deliver, the baby should not be exposed to high levels of Phe. Your doctor can also measure the Phe levels in the baby to make sure they are not elevated after breastfeeding.”

There is nothing recent on LN, so I wondered if I should know any more than that to guide a client?

(I am somewhat concerned about the baby's being tested for PKU. I am not sure that the client (whose midwife mom helped deliver the baby at home) intends to have him tested any time soon, although I have strongly recommended it. Client has some mental retardation from her poorly-managed PKU as a child, and her mom seems to be highly cautious of the medical profession. I'll do what I can to follow through, to try to make sure that it happens.)

Thanks for any words of wisdom.

Fay

Fay Bosman, IBCLC, RLC
www.nwmothernurture.com

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