Jessica,
It sounds like what you want to do is to have something that is easily
accessible to mothers and so perhaps the best thing to do might be to
publish online. This would also mean that you could essentially write as
much as you like and provide lots of photos etc. It might also be an option
to write something for LLL's mag which is published online (but that would
be limited in length). I agree that it is really helpful for mums who are in
unusual breastfeeding situations to have access to good information, they
often cannot find knowledgeable professional help and reading about others
who have been there, done that is really encouraging. If you are feeling so
inclined though something for professionals would no doubt be useful,
perhaps a case series for JHL? BTW, have you seen ABA's booklet on
breastfeeding a child with a cleft?
Really, you just need to start getting words down and you'll find a "story"
will develop and you can go from there, pruning and massaging to suit your
intended audience.
Karleen Gribble
Australia


-----Original Message-----
From: Lactation Information and Discussion
[mailto:[log in to unmask]] On Behalf Of Jessica Harper
Sent: Friday, 2 September 2011 4:57 PM
To: [log in to unmask]
Subject: How does publishing happen?

Im not even sure where to start when I ask this. Im a LLLL & a BFPC for WIC
who sat the exam this year (praying for passing!).  I have three children -
a set of twins, and then a singleton who was born with a cleft of her soft
palate. 
We tried desperately to breastfeed and despite not having the BF
relationship I had hoped for, I was still able to bring in an amazing supply
and provide her exclusive breastmilk for 14 months. I also donated 700+ oz
to 5 other babies. I often frequent the cleft advocate board and there are
always moms who want to breastfeed their cleft affected babies, or at least
want to be able to provide breastmilk to them and yet it seems like there
isn't much information about it or how to do it. 

I know when I found out my daughter had a cleft I searched the internet for
everything and anything I could find. I contacted a dozen of very
knowledgeable breastfeeding professionals and still there wasn't much. Not
many have worked with or had a cleft affected baby.   Id love to write
something like "So, your child has a cleft?" Everything you've ever wanted
to know about feeding your cleft affected child.  But I don't even know
where I would start.  Since having her, I've also worked with a few others
some who were successful, at least for a short duration! 

I know that no two experiences are the same but in my own learning I feel
I've learned so much about different techniques, positions, feeding methods,
etc. How to bring in a great supply etc etc.  I'd love to get it on paper so
when the next mom has a baby with a cleft and she googles information she
can find it. 

I know LLL has a pamphlet about clefts but again it wasn't very detailed.
Barbara Wilson-Clay also wrote a few articles. Has someone already done
something like this and I just wasn't able to find it?  I would have read a
NOVEL if someone would have given it to me in the early days. I was
desperate for information. 
Any input would be appreciated. 

WarmLLLy,
Jessica Harper 

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