I agree. Once we rule out simple things like incoordination of 
swallowing and breathing due to scarring/rehealing at the frenotomy 
site, I'd want a good workup. If you are skilled with a stethescope, you 
can try holding one below his chin to listen to suck:swallow:breathe 
coordination to see if that's contributing to the issue. GI problems are 
also possible, even things like mitochondrial disorders can cause slowed 
intestinal transit, vomiting and pain. I second the motion for a good 
workup.

Catherine Watson Genna BS, IBCLC  NYC  cwgenna.com


On 4/27/2011 11:25 PM, laurie wheeler wrote:
> Julie,
> Wow! What this poor baby and family have been through! If ever there
> was a case for Cathy Genna or someone who understands these issues as
> well as she does, this is the case.
> This really doesn't sound like usual reflux, the baby can be refluxing
> of course, but what really strikes me is the pain when lying supine,
> or in carseat etc. I keep thinking there is a physical/anatomical
> problem like intussusception. I have heard/read of cases where it
> wasn't acute but feeding and GI symptoms like this baby, sometimes
> coming and going until it gets critical. There can be swallowing
> issues, aspiration, etc. I think this baby needs a thorough eval, GI
> and swallow studies I'm thinking. This baby is really suffering and
> that has got to be sorted out fast. In the USA we would want this baby
> seen at a university or Childrens' hospital.
> Laurie Wheeler RN MN IBCLC
> Mississippi USA
>
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