Julie,
Wow! What this poor baby and family have been through! If ever there
was a case for Cathy Genna or someone who understands these issues as
well as she does, this is the case.
This really doesn't sound like usual reflux, the baby can be refluxing
of course, but what really strikes me is the pain when lying supine,
or in carseat etc. I keep thinking there is a physical/anatomical
problem like intussusception. I have heard/read of cases where it
wasn't acute but feeding and GI symptoms like this baby, sometimes
coming and going until it gets critical. There can be swallowing
issues, aspiration, etc. I think this baby needs a thorough eval, GI
and swallow studies I'm thinking. This baby is really suffering and
that has got to be sorted out fast. In the USA we would want this baby
seen at a university or Childrens' hospital.
Laurie Wheeler RN MN IBCLC
Mississippi USA

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