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Thu, 30 Jul 2009 14:44:03 +0200 |
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Hi Wendy,
I'm not sure I fully understand your message correctly, but PKU is NOT the
same as galactosemia. With the latter, NO breastmilk is allowed. With PKU, a
certain amount of breastmilk is fine.
It should just be well checked, as breastmilk contains more phenylalanine
than the special PKU-formula (oops, artificial milk... hahaha... not meaning
to render a scientific odour to the product... ;-)).
As the infant with PKU cannot metabolize phenylalanine, it must not receive
too much of it, but all the other constituents of breastmilk are also for
the PKU-infant very important.
Kindly,
Marianne Vanderveen IBCLC, Netherlands (catching up with laundry,
administration and e-mail after three weeks in California and even meeting
Jaye Simpson at the Folsom Lake-campsite ! ;o))
----- Original Message -----
From: "Wendy Blumfield" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Thursday, July 30, 2009 1:27 PM
Subject: Re: [LACTNET] PKU
>I understood that it isn`t the precise measuring of food that is the issue
>with PKU but that the infant must not have natural protein so even a
>symbolic breastfeeding may be harmful. I am not an expert in this field so
>don`t quote me on this. But I do know that the consequences of undiagnozed
>PKU can be disastrous and irreversible in terms of brain development.
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