There is a way that mother can nurse a baby with PKU with guidance.  There is a certain amount of PKU formula to be taken and then baby can nurse between feedings.  A pediatric metabolic dietitian can work with the mother on this.  Possibly the mom could pump her breasts first and attach an SNS to the breast containing the PKU formula.  I think a ped R.D. along with an IBCLC would be a great team to help this family.  Would need to  be in a pediatric medical center for these resources.

Ginger Carney, RD, LDN, IBCLC, RLC, FILCA
Director, Clinical Nutrition
St. Jude Children's Research Hospital
262 Danny Thomas Place, Mail Stop 732
Memphis, TN 38105-3678
901-595-3315 (office)
pager 595-3578, PIN# 0838
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Finding cures.  Saving children.
www.stjude.org



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