LACTNET Archives

Lactation Information and Discussion

LACTNET@COMMUNITY.LSOFT.COM
Options: Use Forum View

Use Monospaced Font
Show Text Part by Default
Show All Mail Headers

Message: [<< First] [< Prev] [Next >] [Last >>]
Topic: [<< First] [< Prev] [Next >] [Last >>]
Author: [<< First] [< Prev] [Next >] [Last >>]

Print Reply
Subject:
Cerebellar Hypoplasia
From:
Cathy Morris <[log in to unmask]>
Reply To:
Lactation Information and Discussion <[log in to unmask]>
Date:
Tue, 5 May 2009 16:36:37 -0400
Content-Type:
multipart/mixed
Parts/Attachments:
text/plain (2178 bytes) , Cathy Morris1.vcf (671 bytes) 

A colleague and I are currently offering support and information to 2
women whose infants have a condition neither of us has dealt with
before. Odd that both cases came into our practice independently a few
weeks apart. Both have received a diagnosis of cerebellar hypoplasia.
Infant 1 is a six month old with Trisomy 17 mosaicism, severe failure to
thrive (app. 3 pound weight gain over 6 months), difficulty
bottle-feeding without aspirating, fair competence at the breast (but no
weight gain), pumps enough to meet pediatrician’s requirements, and baby
happy and responsive to mom and developing better than we might have
expected. Baby was totally breastfed to 5 months, but due to FTT was
recently started on a supplementation routine of pump, HMF added, and
bottle feed with some breastfeeding allowed. There hasn’t been time for
any improvement in weight gain to be noted. We are concerned about
aspiration and also about how much the breastfeeding has meant to his
development and interpersonal interactions. Most babies with this
condition are formula fed and are also reported to have greater
developmental difficulties than this baby exhibits. The bottle feeding
has adversely affected some aspects of the mother/baby relationship.
Infant 2 was prenatally diagnosed with cerebellar hypoplasia and NTD.
Infant is app. 2 weeks old and was immediately transferred to
aspecialized center 150 miles away. Mother is pumping but planned to
breastfeed. Does anyone have any experience with this condition? 
 Cathy Morris, RN, IBCLC, RLC, CCE
Heart of Georgia Healthy Start
912 Bellevue Aveue
Dublin, GA 31021
478-274-7621
478-274-7622 (fax)
[log in to unmask] 

"Better Health for Babies"

             ***********************************************

Archives: http://community.lsoft.com/archives/LACTNET.html
To reach list owners: [log in to unmask]
Mail all list management commands to: [log in to unmask]
COMMANDS:
1. To temporarily stop your subscription write in the body of an email: set lactnet nomail
2. To start it again: set lactnet mail
3. To unsubscribe: unsubscribe lactnet
4. To get a comprehensive list of rules and directions: get lactnet welcome




BEGIN:VCARD
VERSION:2.1
X-GWTYPE:USER
FN:Morris, Cathy
TEL;WORK:478-274-7621
ORG:;HEALTHY START
TEL;PREF;FAX:478-274-7622
EMAIL;WORK;PREF;NGW:[log in to unmask]
N:Morris;Cathy
END:VCARD


             ***********************************************

Archives: http://community.lsoft.com/archives/LACTNET.html
To reach list owners: [log in to unmask]
Mail all list management commands to: [log in to unmask]
COMMANDS:
1. To temporarily stop your subscription write in the body of an email: set lactnet nomail
2. To start it again: set lactnet mail
3. To unsubscribe: unsubscribe lactnet
4. To get a comprehensive list of rules and directions: get lactnet welcome

ATOM RSS1 RSS2