I'm working with a mom whose baby is being tested for Celiac disease.
The baby has only gained a pound since he was 6 months old; now is ten
months. Mom has seen many specialists; the neuro is the one who
suggested a test for this. He's having a sweat test tomorrow. We've been
working on FTT issues for almost two weeks now, using all the
interventions I know. (Lacto-engineering for hindmilk -  pumps first
then puts him to breast)
 She doesn't want to use formula but has. He refuses a bottle so we
used an SNS. No change in weight in those two weeks. He's also getting
cereal and we tried some other solids.
Has anyone out there had experience with this? Any words of wisdom or
encouragement I can give to her? Her husband is blaming the
breastfeeding.
Mary Kay Smith, RN, IBCLC
Henry Ford Hospital, Detroit MI


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