Jen
The first thing I am thinking is severe allergy or sensitivity to something 
in mom's diet, likely dairy. It sounds things started to be troublesome once 
formula was started for high bilirubin levels. Probably was cow's milk 
formula. The baby later lost weight and supps were again started but baby 
didn't gain. Then the formula was switched (to soy I presume?) and baby 
gained.

It seems baby was sensitized and now reacts to any dairy in mom's diet and 
maybe even beef products. This baby *may* need a short period on true 
hypoallergenic formula like neocate (I believe) or dairy-free donor milk 
(even better) while mom pumps and throws out her milk until she is dairy 
free (maybe a week?). I realize this is drastic and would usually recommend 
continued bf while mother clears her diet, but sounds like this is pretty 
severe.

I was also thinking possible galactosemia (rare) but I think it would have 
presented in the very early days, which this didn't.

This mom will need alot of help with her diet if you go this route. I would 
suggest total cow products elimination, not just dairy.

Laurie Wheeler, IBCLC, MN, RN
NE Mississippi, USA

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