We recently had a baby diagnosed with truncus....sent to major pediatric  
center away from Mom....only recourse we had was to get her to pump and freeze  
milk, which spouse or family member would take to hospital about 5 miles  away. 
 She is still pumping, we encouraged her to stay intouch with a  Lactation 
Consultant post discharge to help maintain her supply and to help get  baby on 
breast as soon as possible.  One of our nursery nurses, roommates  is one of 
pedi nurses at the hospital tending baby and has told us baby is  stable and Mom 
is still pumping.
Unfortunately she could not deliver where the baby would end up, that would  
be my first choice. Next get her involved with a LC to get a pump and set  up  
ahead of time and to see if she could speak with Pedi Cardiologist  ahead of 
time to help formulate a plan.
Plan may not be set in stone dependent on how baby transitions and does  post 
delivery.
But it can help to elevate her role in the team management of her  
child...though Mom is one of the most important members of the "team"  regardless.  It 
just lets them know she wants to provide the best food to  help her child in 
its recovery.
Leanne Jewell RNC, IBCLC, LCCE, FACCE
SFl

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