Elise,
If Mardrey Swenson doesn't reply on Lactnet, get her phone number from your LLL directory. She's right down the road from you (ha ha - ) near Dartmouth Hitchcock and will be a good source of info. Also try your Department of Health office - they probably have a children with special needs specialist who will know about feeding specialists, if you need one. (Good to know this anyway as they'll pay for feeding devices if you need them. At least they will next door here in Vermont!)
I've had local CSTs who were "willing to try" and had good luck with babies who've had difficult births. Good luck!
Dawn Kersula
...down in the banana belt of Vermont
Brattleboro
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