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Date: | Thu, 6 May 2004 23:28:44 EDT |
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Saw a mom the other day with a child with many complications. I have her
permission to post here to see if there is any input on this topic. She is
struggling to keep up her supply and would love some input on how to feed her child
more efficiently. I have checked the archives but nothing comes quite close
to the following:
The child has Pierre Robin Sequence or PRS. Not all kids with PRS
require tracheostomies; some can resolve their airway problems by being positioned
on their stomachs, with gravity helping the tongue to fall forward. He was in
distress right after birth, though, and was intubated immediately. He had his
trach inserted when he was four days old. At 17 days of age, he had a g-tube
put in. Eating by mouth was just too much work for him in those early days.
Now he eats about 23 of 29 total ounces/day by mouth. (No more feeding pump; we
only use his g-tube to put in bolus feeds of 2 ounces at a time at night while
he sleeps.) He eats with a Haberman feeder. He's also eating solids now. And
doing really well with that. He did not have a Nissen fundoplication (which is
a procedure that often goes hand-in-hand with a gastrostomy to prevent
reflux) but he does take Zantac twice a day to prevent reflux. He now has a MIC-KEY
button and it doesn't seem to slow him down at all. He rolls around on his
stomach as if it weren't there.
The surgeons want to wait as long as possible because the palatal
shelves will continue to move into their more permanent locations during the first
year. Waiting also allows for more soft tissue to work with in the surgery.
This child's surgery is at 13 months. The fact that he has a trach and is, as
such, already speech delayed, means that they can "afford" to push the surgery
back a little further still. He is currently 9 months old and is estimated
to have the speech development of a 3-month-old.)and not allowing air to pass
through the mouth/nose.
She is struggling to keep up her supply without baby going to breast.
She is wondering what she can do at this point to begin to bring him back to
beast, yet he can only take milk from Haberman. Any thoughts or ideas?
Thanks, Ann Conlon-Smith, IBCLC
Ann Conlon-Smith, IBCLC
http://www.trianglelactation.com
Breastpumps, Slings, Pillows and more
"What value has compassion that does not take its object in its arms?"
-----Antoine de St. Exupery-----
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